Externally-Led Patient-Focused Drug
Development Meeting for Adult Dermatomyositis
Myositis Support & Understanding (MSU) and The Myositis Association (TMA) brought our patient communities together for the first-ever Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD) on June 7, 2024.
It was a global virtual event designed to share patient and care partner’s perspectives on living with Adult Dermatomyositis. Patient testimonies and panel discussions highlighted the dermatomyositis journey, impacting research and drug development decisions.
Engage, Educate, Empower
Welcome to the EL-PFDD Replay
Click on the red play button to watch the Adult Dermatomyositis EL-PFDD replay.
Video Translation Instructions
To watch in another language, please open the video in YouTube. Complete the following steps:
- Click on the Closed Captions option.
- Click on the settings gear button in the video window.
- Choose Auto-translate. (If this is not showing, click English Auto first and it will appear under it.)
- Choose the desired language.
Voices from the Heart
We wish to extend a special thank you to our Adult Dermatomyositis EL-PFDD panelists for sharing their experiences with us.
Thank You to our generous Platinum Level Sponsors who are committed to improving the lives of myositis patients everywhere.
Thank You to our generous Bronze Level Sponsors who are committed to improving the lives of myositis patients everywhere.
Special thanks to the EveryLife Foundation for Rare Diseases for the Rare Giving Event Sponsorship.
Thank You to our friends who advocate for the myositis community.
